While genetics is a field with great potential, patients may refrain from donating their genetic information for various reasons. Since it concerns the privacy of one's personal information, it is, without doubt, a cautious step to take. There are various consequences that follow the breaching of one's privacy of genetic information; issues with insurance, personal relationships, etc. Thus, researchers of genomics must always be mindful about the ethics of genomic research.
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Jayanthi Mathaiyan, Adithan Chandrasekaran, Sanish Davis.
Perspect Clin Res. 2013.